When I hear someone being corrected for not using person-first language (i.e., “a person with autism,” “a person with a mobility impairment,” “a person who is blind,”) I:
nod in agreement, knowing that person-first language is a sign that somebody "gets it"
blush for the person being reprimanded, wonder how many other ways I’m blowing it and decide that it’s better to keep quiet rather than try and possibly get it wrong
think, “wow, this is complicated! I wonder if in a future world when disability is less stigmatized, we’ll have come up with better terms?”
know that it’s important to minimize the disability because it’s nothing to be proud of
Person-first language was originally promoted to focus on human beings rather than medical conditions. But this now appears as a remnant from an era before disability identity and pride, when disability could only be understood as an insult or shameful. Also person-first language forces people to write in linguistically ways, and shaming people for using identity first language shuts down open conversation and inquiry. Alternating between person-first and identity-first language adds variety and opens the door for more complex thinking around disability.
Question 2
I believe the recipient of the compliment, “I never think of you as disabled,” should be:
flattered
curious about where the statement comes from
grateful
sharing the compliment with the media
Such a compliment comes from a place of understanding disability only as a deficit or problem. If people with disabilities faced less stigma, focus might shift to how they found ingenious ways of doing things and having unique perspectives on the world. P.S. most disabled people don't think of that statement as flattering so it's not the compliment you think it is.
Question 3
I believe finding a cure for disability is:
an impossible pursuit because it assumes that everyone agrees on what it means to cure a disability or even what a disability is in the first place
a sign of just how far science and medicine have come
a worthy use of resources, even though the goal seems hard to reach
right around the corner
Curing most adverse conditions remains a long ways off, even though there has been considerable fundingd. Yes, improvements such as reducing pain, are essential and welcome as they allow for greater functioning and participation. But cure talk never seems to address non-medical problems like stigma, architectural barriers, and limited financial resources, which many disabled people would very much like to see addressed and find very helpful indeed. Further, a large number of people with disabilities are quite happy with who they are and may not want to be cured. Too often cure is defined without significant input from people with disabilities themselves.
Question 4
By engaging in simulation exercises such as being led around blind-folded or traveling in a wheelchair for an hour I would:
be learning about having a disability first-hand, thereby expanding my sense of compassion and empathy for those less fortunate than me
be secretly grateful that I don’t have a disability
be fully prepared to face disability if something terrible happened to me
be glossing over bigger problems that disabled people face such as prejudice, limited resources, and Kafkaesque bureaucracies
Most disability simulations promote a purely medical understanding of disability as a physical situation rather than one that requires dealing with clueless strangers and other barriers. Plus, they only give a sense of the very first moments of living with a new disability rather than demonstrating the many ingenious ways disabled people accomplish various tasks.
Question 5
When I meet someone I don't know in a wheelchair, I:
try to break the ice by causually asking what happened
address whomever standing near them so as not to make the person in the wheelchair uncomfortable by looking down or staring at their wheelchair
try to find somewhere to sit nearby so that we can chat
ask if they'll take me for a ride
Why not deal with our fellow human beings on their terms whenever possible? Whatever the disability, in general personal medical histories shouldn't be asked of strangers. And talking to the (presumed) non-disabled colleague, as if a disabled person is invisible, is insulting and weird. If it's easy to sit, do that, but why make yourself a martyr by squatting uncomfortably?
Question 6
When I'm conversing with a Deaf person through an interpreter, I:
look at the interpreter because it's rude to ignore someone who is talking to me
look at the Deaf person while the interpreter is talking
share that I still remember how to sign "I love you" from elementary school
all of the above
For hearing people this can seem counter-intuitive, but remember the interpreter is facilitating communication for someone else, and therefore is not in fact the person speaking. As for "I love you", you wouldn't say that to someone who's hearing that you don't know, so don't sign it to a Deaf person you don't know.
Question 7
When I think of mental illness such as bipolar or depression, I:
realize it's important, but since I don't know anyone personally, it's an abstract problem that I only think about from tragedies on the news
wish our society was more open about these issues and dedicated more time, more resources, and more frank comversations to them
hope they put in more rigorous background checks to ensure none of these people are in positions of influence or own guns
none of the above
Mental illness is a relative newcomer to the disability tent and has therefore been subjected to less critical scrutiny. Too often gross generalizations that link violence and mental illnesses go unchallenged and thus people with mental illness are highly stigmatized. More stigma means that fewer people disclose their diagnosis even to their closest friends, which in turn reinforces the idea that mental illness is 'exotic' or 'bizzare' rather than a common part of humanity.
Question 8
Most blind people:
live in total darkness having been born that way
are great at giving massages because of their heightened sense of touch
have been completely shut out from mainstream technology
are complicated just like everybody else
Most portrayals of blind people in the media and even in history fixate on the congenital, totally blind person. In reality, the vast majority of blind people lose vision later in life and exist on a complex spectrum that can include people who see only light to those whose eyes can't hold focus. Thanks to accessible mainstream technology, the major challenges to full inclusion are money, prejudice, and clueless developers who don't realize how easy it is create software that's accessible to screen readers.
Question 9
Autistic people:
are part of naturally occuring neurodiversity, an emerging concept that requires more nuanced public conversations
are primarily white males whom display an interest in mathematics, computers, and science
are the victims of a rogue vaccine
realistically, should probably live in institutions
Some consider autism to be the quintessential disability of the 21st century, which means that people with autism remain little understood or appreciated. Stereotypes abound, from believing it to be an 'all-male' disability to understanding the condition in terms of 'idiot-savants'. People with autism themselves are pushed to the margins to make way for 'neuro-typicals' who speak about and for people with autism, with much greater sums of money being devoted to eliminating the condition than to increasing inclusive awareness and working with people on their own terms. As a reminder, vaccines are not and never have been the cause of autism.
Question 10
Invisible disabilities are:
not 'real' disabilities because they don't provoke the same overt prejudice as visible ones do
define a segment of people with disabilities that need to be more fully integrated into the disability community
a phase that most people eventually pass through and go on to lead healthy, productive lives
invented by fakers who can afford to pay for disability diagnosises to get extra time on exams in post-secodary institutions
Invisible disabilities are a growing frontier of the disability world, everything from learning disabilities to chemical insensitivities to chronic illness don't yet get the attention and respect accorded to more familiar physical and sensory disabilities. Let us be clear, people with invisible disabilities are not 'fakers'.
Question 11
The best non-disabled ally for disabled rights, is someone whom:
quickly sizes up situations to anticipate what the disabled might need without having to ask any questions
knows they must talk loudly and slowly to be understood
makes sure that their voice is heard because no one listens to disabled people anyways
reflects on the privileges they hold while joining the struggle, all while taking the lead from people with disabilities
The disability rights movement has benefited greatly from allies, including participants from other social justice movements. But given the long history of well-meaning non-disabled people - medical practitioners, teachers, volunteers, etc. - speaking on behalf of disabled ones, it's wise to seek out disabled expertise and honour the rallying cry: "Nothing about us, without us!"